There are approximately 1300 people with ME/CFS in the ACT. Severity of the illness caries, however even moderately severe cases of ME/CFS are likely to require significant life-style adjustment by patients who may be unable to work or carry out normal day-today activities. The ACT ME/CFS Society helps people with the illness in the ACT region.
The core symptoms of ME/CFS are:
- Significant physical and mental fatigue that substantially reduces activity level
- Worsening of mental and physical fatigue and other symptoms following even minimal exertion
- Dysfunctional and/or unrefreshing sleep
- Muscle and/or joint pain and headaches
- Cognitive impairment including difficulty processing information, concentration impairment and loss of working memory
- Other symptoms include: sore throat, flu-like symptoms, irritable bowel syndrome etc
How will the funds be used?
Funds will be used to provide:
- support to those who suffer from the debilitating illness' known as ME/CFS and FMS. Ages can range from as young as six years of age to the elderly.
- information to inform and education those who are affected by these illnesses along with medical professionals and the general public.
- advocacy by providing information to relevant organisations and institutions to assist sufferers to receive appropriate levels of assistance
Key Areas of Expenditure
Telephone information and support service
Self help courses
Support group meetings
Information sessions
Providing free information to health professionals and the general public