The Society is seeking funds to sustain its work with individuals, families, carers and friends affected by ME/CFS. ME/CFS is a serious, debilitating illness that affects multiple systems of the body. Since 1969, the World Health Organisation's International Classification of Diseases has listed ME/CFS with Post-Viral Fatigue as a disorder of the neurological system in code G93.3 (and not under the mental health code F48.0). The underlying pathology of ME/CFS is not yet fully understood. For this reason, there is no single test that can determine if a person has ME/CFS and there is no known cure. It is estimated that more than 45,000 persons in NSW, and 134,000 in Australia, experience the challenges of this illness on a daily basis (Australian Bureau of Statistics, 2001).
How will the funds be used?
To provide support to those affected by ME/CFS (including patients, carers, families and friends) through a quarterly journal. To increase public awareness through Awareness Week Activities (held in May each year) which are designed to educate the public about the existence and severity of ME/CFS. To provide advocacy for those affected by ME/CFS by providing the medical and scientific communities, government agencies and other relevant institutions with information to assist patients to receive appropriate levels of care and support.
Key Areas of Expenditure
Contribute towards ongoing Society operations costs
Provide a quality quarterly journal for members of the Society
Develop projects to support those affected by ME/CFS
