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NF Australia provides support and assistance for persons and families affected by Neurofibromatosis (NF) a genetic disorder, which covers three conditions, and remains relatively unknown despite NF type 1 having a ratio of one in 3,000 in the community. NF is difficult to describe because it presents with an enormously different spectrum of symptoms and problems. It can be very disabling.
"Neuro…what?" That is most people's reaction when they first hear about neurofibromatosis. Most people have never heard of it, even though more people have neurofibromatosis than Cystic Fibrosis, Duchenne Muscular Dystrophy, Tay Sachs Disease, and Huntington's Disease combined .
Neurofibromatosis, or NF, is the umbrella name given to three genetic disorders that affect nerve tissue: NF1, NF2, and Schwannomatosis. NF1 was also known as Von Recklinghausen's Disease.
Although NF1 is usually diagnosed in children, it is a lifelong medical condition. NF Australia's Children's Tumour Foundation of Australia raises funds and awareness of Neurofibromatosis Type 1 the most common form of NF and promotes & funds the conduct of research into the condition, which can affect many organs in the body, including the skin, eyes, bones, and nervous system. Some 50% of young people with NF1 will have experienced Learning Disabilities at school.
"Neuro…what?" That is most people's reaction when they first hear about neurofibromatosis. Most people have never heard of it, even though more people have neurofibromatosis than Cystic Fibrosis, Duchenne Muscular Dystrophy, Tay Sachs Disease, and Huntington's Disease combined .
Neurofibromatosis, or NF, is the umbrella name given to three genetic disorders that affect nerve tissue: NF1, NF2, and Schwannomatosis. NF1 was also known as Von Recklinghausen's Disease.
Although NF1 is usually diagnosed in children, it is a lifelong medical condition. NF Australia's Children's Tumour Foundation of Australia raises funds and awareness of Neurofibromatosis Type 1 the most common form of NF and promotes & funds the conduct of research into the condition, which can affect many organs in the body, including the skin, eyes, bones, and nervous system. Some 50% of young people with NF1 will have experienced Learning Disabilities at school.
Are donations tax deductible? Yes
Will I receive a receipt for my donation?
Yes, immediately sent to you by email when approved.
Donate to Children's Tumour Foundation of Australia Appeal
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To donate by phone, call (02) 9719 3356. Please have your credit card details on hand when you call.
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Suite 2
84 Victoria Road
Drummoyne NSW 2047
Suite 2
84 Victoria Road
Drummoyne NSW 2047
$1,600
raised so far