The Prader-Willi Syndrome Better Living Foundation (PWSBLF) is a not-for-profit organisation that was established in September 2013. Our purpose is to improve the quality of life for young people and adults living with Prader-Willi Syndrome (PWS) and support the greater Prader-Willi Syndrome community.

The PWSBLF envisions that young people and adults with PWS should lead quality and rich lives, with equal opportunities to live independently and engage in their communities. By providing a range of services with a commitment to best practise, research, innovation, local and global expert collaborations, the PWSBLF is best positioned to address the existing inadequacies related to housing for adults with PWS.

Our Mission

To facilitate, research and develop supported housing models offering innovation, choice and necessary environmental support for adults with PWS.

To establish a PWS Centre for Excellence and resource centre in Victoria, Australia to offer education, training and support to the Australian PWS community.

To provide resources and information to empower people living with PWS and their families to plan and transition their move out of home.

To collaborate with PWS Associations, housing associations, disability service providers, universities and consulting firms to make positive change for persons living with PWS in Australia by increasing standards of care , support and housing.

Your support will contribute to improving lives of our young people and affecting generations of families in Australia.