Myalgic Encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS) is a severe, complex, acquired illness with numerous symptoms related mainly to the dysfunction of the brain, gastro-intestinal, immune, endocrine and cardiac systems. Symptoms include overwhelming post-exertional fatigue from mental or physical activity; dysfunctional sleep; pain; problems with memory; sensitivity to light, touch and sound; problems with standing and balance; problems with body temperature and weight; and recurrent flu-like symptoms; that persist for at least six months in adults; or three months in children.
ME/CFS affects men, women and children of all ages, cultures and socioeconomic backgrounds. It strikes 0.5% of the population. Across Australia, that represents well over 100,000 people and their families. In essence, it means that almost everybody knows someone whose life has been significantly impacted on by ME/CFS.
We are Raising Funds to Improve our Communication Strategy
To our members, isolation is often an issue. Because many members are housebound by their disabilities - and in the worst cases bed-bound - links provided by modern technologies are critical. We run a regular email bulletin, a quarterly journal and SMS texting service to keep members in touch with us and each other. We have a Facebook page with hundreds of members joined up. And we have a world-renowned site at
www.sacfs.asn.au which has over a quarter of a million unique hits per year, from all over the globe. In this way we can service members in their homes.