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Prader-Willi Syndrome Association of Victoria Incorporated

2020 15 for 15 Challenge

$

HUNGRY FOR CHANGE! 
Prader-Willi Syndrome (PWS) is a rare and complex, genetic disorder that affects Chromosome 15. So, we named our fundraising effort, the 15 for 15 Challenge. One of the more common characteristics of PWS is the development of an insatiable hunger around the age of 2 that lasts a lifetime. Imagine a hunger that can never be satisfied and the emotional state you find yourself in when ‘hangry’. Feelings of anxiety, exhaustion, anger, frustration and stress that plague your body and mind – your heightened focus on food – now imagine trying to participate in everyday life, living with these feelings every minute of every day. This is an incredibly challenging state to live in daily.

HOW WILL YOUR 2020 FUNDRAISING EFFORTS AND DONATIONS SUPPORT PRADER-WILLI SYNDROME?
Funds raised will assist the Department of Paediatrics at Monash University to develop a desperately needed state-wide, evidence-based model of care for children with Prader-Willi Syndrome. The project will be led by Professor Katrina Williams at the department of paediatrics at Monash University in close consultation with Assoc. Professor Tom Connell from the Royal Children’s Hospital. The program will be developed for implementation at both major Victorian paediatric hospitals (Monash Children’s Hospital and the Royal Children’s Hospital) with regional links.

The model will be designed for implementation across all Australian hospitals that care for children with Prader-Willi Syndrome.

Funds will also be directed to the Prader-Willi Syndrome Association of Victoria (PWSA Victoria) to ensure continuity and growth of the vital supports and services we provide to our community.

For full details of the event, please visit the PWSA Victoria 15 for 15 Challenge information site

David Rhys-Jones Former Carlton premiership player is the official Ambassador for the 15 for 15 Challenge.  David's son, Cooper, aged 16, was diagnosed with Prader- Willi Syndrome and David and his family are a big part of the PWSA Victoria and their community, actively working with the Association to raise awareness and much-needed funds. 

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Help Prader-Willi Syndrome Association of Victoria Incorporated to reach their goal of $100,000

$28,978 raised

Contact Details

PO Box 92
KEW VIC, 3101

0451797284

Are donations tax deductible?

Yes

Will I receive a receipt for my donation?

Yes, as soon as your donation is processed.