Myalgic Encephalomyelitis (ME), sometimes known as Chronic Fatigue Syndrome (CFS), is a severe, complex acquired illness with numerous symptoms related mainly to the dysfunction of the brain and the immune and endocrine systems. It affects people of all ages, ethnic and socio-economic groups. It affects more women than men. Fibromyalgia (FMS) is a chronic pain condition with very similar symptoms to those of ME/CFS. It is difficult to distinguish between the illnesses and many patients are diagnosed with both.

There are approximately 1200 people with ME/CFS in the ACT (66000 in Australia). Severity of the illness varies with some people unable to work or carry out normal day-to-day activities. Severely affected people may be housebound or even bedridden. ACT ME/Chronic Fatigue Syndrome Society helps people with the illness in the ACT region.

How will the funds be used?

Funds are used to provide ongoing support and assistance for people affected by ME/CFS and FMS. In addition, resources and information are provided for patients, medical practitioners and the public.

Key Areas of Expenditure:

• Support service
• Support group meetings
• Telephone Information
• Self Help Course
• Publications
• Public seminars
• Specialised information sessions for medical practitioners