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Amazing Amelia's 15 for 15 challenge team 2021

Supporting Prader-Willi Syndrome Association of Victoria Incorporated

Prader-Willi Syndrome Association of Victoria Incorporated

15 for 15 Challenge (2021)

May is Prader-Willi Syndrome (PWS) awareness month.  PWS is a rare and complex genetic disorder that affects Chromosome 15. So, we named our fundraising effort the 15 for 15 Challenge.

One of the most common characteristics of PWS is the development of an insatiable hunger around the age of 2 that lasts a lifetime. Imagine the emotional state you find yourself in when ‘hangry.’ Feelings of anxiety, exhaustion, anger, frustration and stress plague body and mind, and the focus on food is heightened. This is an incredibly challenging state in which to live daily. Amelia, my daughter has PWS. She is enjoying her schooling and life in general but still suffers from the complications of her condition.

HOW CAN YOU HELP?

  • by choosing a daily challenge for the 15 days. This could be physical, dietary or behavioural.  As a family, we have set ourselves the following:  I will get rid of 15 things in the garage (225 in total) and will sit in malasana (yogi's squat) for 1.5 mins.  Sean and I will do 150 push ups a day (total of 2250 each).  Ella Maria will hold malasana for 15 mins and plank for 1.5 mins. Amelia will not pick her skin and will play soccer for 15 mins;
  • by purchasing 15 for 15 branded merchandise here and passing on the word about PWS;
  • by donating on this website.  All donations greater than $2 are tax deductable.

The funds collected this year will support:

  • development of a state-wide model of care for children with PWS.  This will be implemented at both the Monash and Royal Children’s hospitals and could eventually be rolled out nationally;
  • the services and activities of PWSA Victoria, such as our annual camp, social and educational events and helpline;
  • the raising of awareness of PWS.


PRIZES

This year PWSA Victoria would like to reward the efforts of our broader community in supporting this cause. The main prize is a holiday for 4 on the Gold Coast and there are two weekly wine prizes.

You can read more about campaign and the prizes here
 
Thanks for your support.

 

Nick Burke

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Help to reach the goal of $5,000

$2,400 raised

Time left

Ends on 30/07/2021 at 5:00 PM

Donations Received

Logo Photo Anonymous
$30
Logo Photo Aimi Gutteridge
Great work Nick, thanks for sharing the journey with us.
$51
Logo Photo Ken Semmler
$256
Logo Photo paul skavaas
Hi Nick, best wishes to you and family Best regards Jan & Paul
$204
Logo Photo Feisar Joya
A fantastic challenge for a great cause. Amelia, Sean, Nick and Ella you are an inspiration and we love you
$51
Logo Photo Ian Burke
You are an inspiration to us all, Amelia. Lots of love Nana and Pa.
$1,024
Logo Photo Jo-Jo Burke
You are amazing Amelia. All our love Lara and Dylan xx
$50
Logo Photo Mike Costello
$51
Logo Photo Anonymous
$30
Logo Photo Janny May
$76
Logo Photo Filomena Andrade
$30
Logo Photo Chris Osborne
Good luck with the challenge Nick and family.
$51
Logo Photo Leo Connelly
$153
Logo Photo Veronica Marinoni
$30
Logo Photo Chloe burney
$51
Logo Photo Michael Mozina
$51
Logo Photo Nicholas Burke
Keep up the great work PWSA Vic and go Amelia
$204

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