Cover Photo

FOP Australia

FOP Australia


Fibrodysplasia Ossificans Progressiva (FOP) is one of the rarest, most disabling genetic conditions known to medicine, causing bone to form in muscles and other soft tissue. Whenever extra bone is formed across joints it permanently restricts movement. It is a progressive disease and there is currently no cure. This is where we need your help

How will the funds be used?

Our mission is to

  • raise awareness of the condition and prevent misdiagnosis; to operate on a FOP patient can have detrimental effects worsening the condition
  • provide a support network for individuals and families; and
  • establish and fund research towards a treatment and cure. Finding a cure for FOP can also help find cures or treatments for other bone diseases, like osteoporosis.

Why we need your help?

Rare diseases in general, are often overlooked underfunded. There are 19 patients in Australia and 2 in New Zealand and it is difficult for us to receive funding with such a small group of people. However, your gift can help us contribute to the international effort and help beat this horrific condition.

Fundraise for this cause

Help support this cause by creating your own 'CrowdRaiser' fundraising page.

Contact Details

Please Contact for Information
ADELAIDE SA, 5000


Are donations tax deductible?

Yes

Will I receive a receipt for my donation?

Yes, as soon as your donation is processed.

Amount Contact Questions Payment
1
2
3
4

Show cause section
$
0.00

Change donation details
The organisation will still receive your details, but they will not be displayed publicly

Change contact details
Separate multiple email addresses with a comma
Select your gift card delivery method
Once your donation has been processed, we'll send you a printable PDF version of the card to the email address you entered above, so you can print it yourself and give it to the recipient.
We'll automatically send an eCard to the recipient's email address (to be provided below) on the date you choose.

Select an image

Since the gift card will be in A4 size and the image will be half of the card, please upload an image with at least in 794 height x 561.5 width dimension (96 PPI).
Please refer to this link for resolutions options for A4 paper size in pixels.

Enter your message
Recipient email address
(Separate multiple email addresses with a comma)
Choose a date for the email to be sent

Preview

Please ensure the above information is correct. By clicking 'Next', you agree to GiveNow's privacy policy and terms of use.