Huntington's WA
Hope, Dignity and Awareness for those with Huntington's
Huntington's Disease is a hereditary neurological condition that leads to progressively deteriorating muscle co-ordination and cognitive ability, drastically impacting the quality of life of those who are symptomatic. However, the impact of this disease affects not just the individual themselves, but also their carers, families and the communities they live in. A child with a parent with Huntington's disease has a 50/50 chance of inheriting the disease. There is currently no cure.
Huntington's Western Australia aims to enable the best possible health and wellbeing for Western Australians impacted by Huntington's Disease through advocacy, support and education.
How will the funds be used?
All funds will be utlised to provide ongoing services to those in the community impacted by Huntington's Disease.
Vital services are provided through Huntington's WA's Individual and Family Services program which includes; support groups for carers as well as people who are symptomatic, gene positive and support networks for young people; our Day Centre enrichment program, financial asssistance, telephone support, community events, outing and retreats.
Key Areas of Expenditure
- Organising support groups (Youth Support, Gene Positive, Carers Group, Symptomatic)
- Raising awareness and understanding about Huntington's Disease
- Huntington's WA eNews and Social Media
- Operating a weekly day centre enrichment program
- Providing financial assistance
- Collaborating in research projects related to Huntington's Disease
- Counselling for individuals and families
- Providing information and resources for the Huntington's Disease community and health care professionals
- Referrals to allied health professionals
- Telephone service and home visiting
Fundraise for this cause
Contact Details
Are donations tax deductible?
Yes
Will I receive a receipt for my donation?
Yes, as soon as your donation is processed.