This festive time you can give a young person impacted by Huntington’s a wonderful gift…knowing they’re not alone.  

Elle’s world collapsed when her Nanna was diagnosed with Huntington’s disease when she was just 14 years old. She was devastated as she had been her main carer for a decade - she had never felt lonelier in her life. 

What’s it all about:
Elle and her family knew little about Huntington’s disease before her Nanna was diagnosed. They soon discovered it was like Parkinson’s, Alzheimer’s, Motor Neurone Disease and Schizophrenia all at the same time. It truly is an awful, debilitating and demoralising disease. Finding our youth support services changed everything for Elle. 

Read Elle’s full story.

How you’ll make a difference:
Our youth support services are a lifeline for children and young people aged between 5 and 25. With a gift today, you can help us continue to give them the friendship, advice, support and information to ensure they don’t feel alone. 

What you can do:
By helping to support our youth support services, you can transform the lives of young people like Elle. Elle told us “Huntington’s isn’t fair. It’s difficult to watch someone you love fight it. I’d have no idea where we’d be today if it weren’t for Huntington’s WA. These vital services have transformed Nanna’s life and mine.”

Will you help?

$60 will fund a resource pack – which focuses on making learning about Huntington’s more enjoyable for a child.

$75 will help to support a face-to-face support visit from a youth worker to a young person in our HD community.

$300 will cover the costs for a young person to enjoy a wellbeing camp to spend time with others that understand them.

Until we find a cure, we will continue to provide our vital youth support services and our life-changing community services for families across our State. 

I hope you will do one more thing and donate to these much-needed services to help young people like Elle and her Nanna. 

Thank you for caring.

Lenni
Executive Director