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Prader-Willi Syndrome Association of Victoria Incorporated

PWS 15 for 15 Challenge (2022)

$29,192 raised of $100,000 goal
$29,192 raised of $100,000 goal

In May 2022, the 15 for 15 challenge will raise awareness and funds for Prader-Willi Syndrome. Money raised will assist the Department of Paediatrics at Monash University to develop a desperately needed state-wide, evidence-based model of care for children with Prader-Willi Syndrome.

The project will be led by Professor Katrina Williams of the Department of Paediatrics at Monash University in close consultation with Associate Professor Tom Connell from The Royal Children’s Hospital. Monash Partners Academic Health Science Centre, a partnership between leading health service, teaching and research organisations, will support the state-wide plan by working with all stakeholders, including children, families, carers and front-line clinicians, to identify and prioritise elements of best care. The elements that will be prioritised include specific interventions and supports, models of care, location of care and key principles of care.
The program will be developed for implementation at both major Victorian paediatric hospitals (Monash Children’s Hospital and The Royal Children’s Hospital) with regional links.

The model will be designed for implementation across all Australian hospitals that care for children with Prader-Willi Syndrome.

Funds will also be directed to the Prader-Willi Syndrome Association of Victoria (PWSA Victoria) to ensure the continuity and growth of the vital supports and services we provide to our community.

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Contact Details

PO Box 92
KEW VIC, 3101


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Yes

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