Angelman Syndrome (AS) is a rare neuro-genetic disorder affecting about 1 in 20,000 people. It is characterized by severe intellectual impairment, lack of speech, seizures, severe sleep disturbance, movement and balance issues, and numerous other features. Individuals with AS require full care and assistance throughout their lives, as well as a range of medical interventions and associated therapies.
The Angelman Syndrome Association aims to:
- Educate concerned families, the medical and educational communities, the general public and other interested organisations and individuals on the diagnosis, characteristics, treatment, management and prevention of Angelman Syndrome
- Support and Advocate for Angelman Syndrome individuals and their families by establishing support systems, providing regular gatherings, seminars and conferences, gathering and disseminating information on Angelman Syndrome, and working with the medical and educative communities to provide services and facilities
- Encourage the medical and educational communities to undertake research activities for the benefit of Angelman Syndrome individuals and their families
- Raise Funds in order to provide services and support for Angelman Syndrome individuals and their families
