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Angelman Syndrome Association Australia

Angelman Syndrome - Advocacy, Support and Awareness

Angelman syndrome (AS) is a rare neuro-genetic disorder affecting about 1 in 15,000 people. It is characterised by severe intellectual impairment, lack of speech, seizures, sleep disturbance, movement and balance issues, and numerous other features. Individuals with AS require full care and assistance throughout their lives, as well as a range of medical interventions and associated therapies.

The Angelman Syndrome Association Australia is an all-volunteer registered charity. All donations go directly to providing the following:

We support families on their diagnostic journey and through all stages of life, connecting with the AS community at a local, state, and national level.  We develop and identify quality resources to help families in their day-to-day living. We advocate with government on matters such as health, NDIS, and quality care, and contribute to Royal Commissions and proposed laws and regulations that impact our AS loved ones and their families.

We develop and provide resources to inform and educate AS families, medical and allied health professionals, educational providers, and the general public about Angelman syndrome.

We promote medical, therapeutic, and educational research that will benefit families and individuals with Angelman syndrome. We collaborate with the Foundation for Angelman Syndrome Therapeutics (Australia) to keep the community up to date with research and to encourage research in Australia.

We fundraise to provide support for Angelman syndrome individuals and their families in times of crisis, and to contribute to hosting our biannual conference. We rely on grants, donations, and testamentary gifts from the community and are grateful for our supporters.


Contact Details

PO Box 554

Are donations tax deductible?


Will I receive a receipt for my donation?

Yes, as soon as your donation is processed.

ASAA is a national organisation made up of families across Australia. We acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to land, water and culture. We pay our respects to their elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples.

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