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Support Children of Batten Disease

The Australian Chapter of the Batten Disease Support & Research Ass Inc

Batten disease (Neuronal Ceroid Lipofuscinoses) is an inherited disorder of the nervous system that usually manifests itself in childhood. Early symptoms of Batten disease (or NCL) usually appear in childhood when parents or doctors may notice a child begin to develop vision problems or seizures. In some cases the early signs are subtle, taking the form of personality and behaviour changes, slow learning, clumsiness or stumbling.

Over time, affected children suffer mental impairment, worsening seizures, and progressive loss of sight and motor skills. Children become totally disabled and eventually die. Batten disease is not contagious nor, at this time, preventable. To date it has always been fatal.

How will the funds be used?

  • To support families, carers, teachers and alike with information and programs.
  • To fund scientific research to find a treatment or cure.

Key Areas of Expenditure

Family support programs
Support scientific research
Provide infrastructure

Are donations tax deductible? Yes

Will I receive a receipt for my donation?
Yes, immediately sent to you by email when approved.

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