FoxG1 syndrome is profoundly (very) disabling.  Affected children are unable to sit, walk, eat or talk by themselves and they need our help.

Due to recent revolutionary advances in genetics and technology there is massive hope that this single gene deletion can be cured. Please help FoxG1 foundation raise urgently needed funds to find a cure for children like Kush everywhere.  

Why are we collecting funds?

We are raising funds to enable research on FoxG1 gene therapies at UNSW and at other Australian research centres.

FoxG1 foundation is a not for profit organisation that works with FoxG1 families, carers, researchers, health professionals and the public to raise awareness and find a cure for FoxG1. We are the only foundation that is 100 % focussed on FoxG1 research, support, increasing diagnosis and finding a cure for this debilitating disorder. We are dedicated to raising awareness, facilitating research, improving diagnosis and treatment of FoxG1 and making life better for children affected by FoxG1.  Our mission is to find a cure for FoxG1 and end suffering.

Why are we needed

• FoxG1 is profoundly debilitating, affected children are unable to walk eat, or sit. As they cannot talk, they need someone to be their voice and stand for them.
• With advances in genetics and technology diagnosis is now possible. (Kush was first child in Sydney diagnosed in Mar 2015, there are now many more FoxG1 children diagnosed). The foundation is needed to give these newly diagnosed families a web of support to comprehend their difficult diagnosis.
• Gene therapies these days are promising great results. The foundation has started FoxG1 research at UNSW and needs your support to continue this.

What we do to help:

FoxG1 foundation is committed to :

• Raising awareness about FoxG1
• Raising funds to enable research
• Connecting families and sharing the journeys and helping everyday lives.
• Enabling quicker diagnosis by working with paediatricians and neurologists
• Advocating for increased research interest and this may have broader consequences

We need to raise $50,000 annually to support our present research commitments. As we have no corporate or government support, we do really need the support of individuals to keep this essential research happening.

TOGETHER WE WILL FIND A  CURE