There is a serious lack of awareness around CMT, which often leaves people feeling scared and isolated especially when they are first diagnosed. To address this issue, we have teamed up with the Centre for Community-Driven Research to provide a FREE Telehealth Nurse service to anyone in Australia.

This service offers emotional support, guidance, and information to those living with CMT, their families, and friends. This service greatly improves the overall well-being and quality of life for individuals living with CMT, as well as their loved ones. It helps those feeling overwhelmed or unsure of where to turn, providing a sense of comfort and reassurance during challenging times.

Unfortunately, we currently don't have any government funding for this service and therefore to keep this service up and running, we need public donations.

Why support our fundraiser?

Direct Impact: Your donation will directly support individuals and families affected by CMT.
Improved Quality of Life: With your help, we can provide critical information and resources to manage CMT effectively.
Community Support: By contributing, you become part of a community dedicated to improving the lives of those with CMT.
 

Some of the feedback we have received from participants using this service:

"The nurse was extremely knowledgeable very kind, courteous and caring. She made me feel very comfortable and safe and her knowledge on my condition was extremely professional and senior. There was so much that I didn’t know and she made it much easier for me to understand."

"This service is great. I felt really listened to and understood. I felt heard and supported. I was offered good advice and really appreciate this service."