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Prader-Willi Syndrome Association of Victoria Incorporated

Prader-Willi Syndrome Association of Victoria

Prader-Willi Syndrome (PWS) is a rare and very complex non-inherited genetic disorder in which several genes on the 15th chromosome are deleted or unexpressed.

The Prader-Willi Syndrome Association of Victoria (PWSA) is a support group providing awareness, education and support to people with PWS and their families.  Our Association is volunteer and parent run with no Government funding or grants.

The association provides/offers:

  • In service training and support to schools, work places and adult centres in Victoria, South Australia and Tasmania.
  • Members receive quarterly newsletters and updates on information and research as well as notification of upcoming events and important dates.
  • Members have access to playgroups for pre-school age children.
  • Members have access to Parent/Carer support services.
  • Members are invited to social events, information sessions and family days to meet other families, share and exchange information and be part of this special family.

The Prader-Willi Syndrome Association of Victoria relies on member's registrations and donations from the community to continue its vital support, services and training.

Your support helps us improve the quality of life of people living with PWS.


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Contact Details

PO Box 92
KEW VIC, 3101


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