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UsherKids Australia

Helping Usher kids love their lives


UsherKids Australia is a parent-led, not-for-profit organisation which aims to support children with USher syndrome and their families.  

Usher syndrome is a rare genetic condition causing hearing loss, deteriorating vision loss and vestibular dysfunction.  Usher syndrome is a unique and isolating disability resulting from the multi-sensory impairment and can siginificantly affect communication, education, socilisation, mobility, employment and independent living. 

Your fundrasising efforts will help us to:

  • Provide phone, in person, and online support to newly diagnosed families, linking them with appropraite supports and services in their area
  • Create written and video resources for famileis on Usher syndrome
  • Produce and deliver our biannual conferences that parents can attend on Usher syndrome specific topics
  • Deliver professional development sessions for teachers and allied health professionals working with children with Usher syndrome
  • Provide connections between parents of young children with Usher syndrome, as well as peer to peer support, for teenages and young adults with Usher syndrome 
  • Provide targeted programs for children and young people with Usher syndrome to enable them to be independent and to develop self-actualisation

 

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Contact Details

38 Kershaw St
MORDIALLOC VIC, 3195

0414743074

Are donations tax deductible?

Yes

Will I receive a receipt for my donation?

Yes, as soon as your donation is processed.

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