UsherKids Australia is a parent-led, not-for-profit organisation which aims to support children with Usher syndrome and their families.  

Usher syndrome is a rare genetic condition causing hearing loss, deteriorating vision loss and vestibular dysfunction.  Usher syndrome is a unique and isolating disability resulting from the multi-sensory impairment and can significantly affect communication, education, socialisation, mobility, employment and independent living. 

Your fundraising efforts will help us:

• Provide phone, in person, and online support to newly diagnosed families, linking them with appropriate supports and services in their area
• Create written and video resources for families on Usher syndrome
• Produce and deliver our biannual conferences that parents can attend on Usher syndrome specific topics
• Deliver professional development sessions for teachers and allied health professionals working with children with Usher syndrome
• Provide connections between parents of young children with Usher syndrome, as well as peer to peer support, for teens and young adults with Usher syndrome 
• Provide targeted programs for children and young people with Usher syndrome to enable them to be independent and to develop self-actualisation